24 minutes ago
Wednesday, February 2, 2011
Frustrated, hurt, angry, scared
Okay, so as you can probably tell by the title, this post is mostly going to be a venting session. I definitely need one. Last week at Elliot's 4 month appointment, I was told that since his flat spot on the back of his head is not filling out like it should and since he tilts his head to the right he would need to wear a helmet to correct the shape of his head. The tilting is Tortocollis. The pediatrician said we needed to go see a cranial specialist for the official diagnosis and to verify if he would need a helmet. So I made an appointment with a doctor at Primary Children's. Today we went in to see the specialist. First thing he said is why didn't the doctor tell us what exercises to do with him to help. And that this is something that should have been noticed and seen about when he was 1 month old and not 4 months! The way he talked down to us made us feel like it was our fault! Aargh! I wanted to scream at him and cry at the same time. On one hand, I don't feel like we did anything wrong or neglected anything. At 1 month of age, the flat areas in the back of his head were still in the process of filling out, and there didn't appear to be any stiffness in his neck at all. At his 2 month appointment the pediatricain said that his head was still a little more flat than it should be, and to make sure we give him plenty of tummy time so it can do that. So that is what we did. When I started noticing that one side of his head wasn't filling out, I tried to prop him so that he would lay on the other side to give it the chance to fill out. Obviously, it didn't. Than at 3 months of age, we started noticing that he was tilting his head to the right, and that he wouldn't look left as much as right, and when you would try to move his head or tilt it to the left, it was stiff and he did not like it at all! I was a little concerned, but this had happened with my nephew when he was a baby, and after time of propping him so he looked the other way, he filled out and had full range of his neck. So we thought we would do the same and see how things went and discuss it with the doctor at his 4 month check-up. Well, I guess that was the wrong thing to do according to this specialist! Sometimes, I feel like we did the best we could with what we knew and were told to do, but fell short. But sometimes today, I start to think about it and wonder, Was there more I could have done? Did I really do all that I could? Was I not concerned enough about my baby to get in sooner? I must be a bad mom. Is it because I work a full time job and am not with him all day? If I was with him all day, would I have noticed it happening sooner? Or did I do the right thing, and it couldn't have been avoided no matter what we did or how early we noticed symptoms? But how dare the doctor be all "high and mighty" like that? Just because you are a Plastic Surgeon and a cranial specialist does not give you the right to treat someone like that! Especially a first time mom! Jerk!!!! Anyway, so now we will be taking Elliot to physical therapy, doing stretches at home, and tomorrow he goes in to get fitted for the helmet. Hopefully everything will correct itself quickly. Okay I feel a bit better now, well, until the next emotional breakdown.
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9 comments:
My nephew had to have a helmet, (@ 3 actually) to correct the exact same two things. But he was more like 6 months because he was sitting up at the time. So don't you dare think that you are behind in this. It's still going to take the certain amount of time to correct, whether you start at one month or four. This is not as scary as it sounds and you can get some really fun decals for the new do. (My brother-in-law chose a UofU one for his little guy.) If you need to talk or have any questions, I actually had two different nephews go through this. It's seemingly rather common, but yes, still a bit scary. Love you guys!
Totally not your fault. You did what you thought was best, based on your intuition and past experiences!! What a jerk that doctor is!
Doctors always think there time is more important than yours and everything about them is better because they went to school. Heck Im going to school to be a nurse and praying I dont turn out the same way. You are NOT at fault. Dont you dare beat yourself up! You work full time to support your family! And you are a wonderful mommy. His face lights up everytime you walk in the room. So you must be doing something right. Keep that beautiful chin up! I love you!
Angie, doctors are jerks. I know this from personal experience. To be honest, I might not have even noticed something like that at all!
Also, It doesn't matter if you work or stay home, you could be a good or bad mom either way. Right now you are doing the right thing for your family by providing. That is what needs to be done and you are doing it. That makes you an AMAZING mom.
It sounds to me like you did exactly what you should have done. You are doing your best, and believe it or not, that is enough. Your son will be fine in the end. And if there was anyone who was behind, it was the doctor, not you.
Good luck!
Michael had a similar thing (where one side of his head was flat), the doctor looked at it and just told us to keep an eye on it, give him plenty of tummy time, turn his head the other way, etc. We ended up getting him adjusted by a Chiropractor that specializes in babies (at Josh's school) and it really helped. It relaxed the one side of his neck so he was more comfortable turning his head the other way. This fixed our problem. That doesn't mean it would necessarily fix Elliot's- I just thought I'd share since it worked for us. Michael's head is now great.
That being said, that doctor wasn't at all considerate of your situation and most certainly was down right rude. You're a first time mom- you aren't going to know everything to be or not be concerned about. I feel like a nut case half the time;) The important thing is that you know now- and can make it better by getting the help you need. I agree with the other posts, don't beat yourself up about it, you're doing the best you know how to do with the knowledge inside you- and that's all anyone can do. I'll be praying for you, good luck with this;)
I'm going to take a wild stab in the dark and guess it's Dr. Sidiqqi..... He did Eddie's surgery and while he's a really good doctor, his patient/parent/doctor manners SUCK. I think doctors are just out-of-whack, in general. They either make you feel like crap for not catching a problem that you don't even know you need to watch for, or they don't believe you when you KNOW there's a problem that they don't want to see.
You are a fantastic mom. The problem he's facing right now would have happened anyway, no matter what you did. And it doesn't matter if you catch it at 2 months or 4, they both have the same outcome. So PLEASE don't beat yourself up over it.
It was actually Dr. Morales. They must all be like that. :(
I obviously haven't been on your blog for awhile!
Just so you know I still don't know everything to look for and I have three! That's what my last one has taught me, each and every kid is different and you do the best you can with what you have. :) You're doing fine.
I am sorry Angie. Mom guilt is the worst!!! It also never goes away but just remember, Heavenly Father sent you your sweet little one and trusted YOU with him. He knew the situation you would be in when your little one came and He knew you would be the best mom with everything around you and each circumstance that would come your way. You are doing the best you can!!
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